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Meet the Kids: Dixie & Alexus

 

dixiealexusShhh…don’t tell Alexus and Dixie that they have limitations!

 

“Fearless” is how their mom describes her six year old twins, with Dixie being a little more of a tomboy than Alexus. Two little girls with with a very long diagnosis: periventricular gray matter heterotopias, as well as ARSACS, which is a deletion of the SACS gene within chromosome 13. This is much like Cerebral Palsy but is progressive like Muscular Dystrophy. They are fun loving, independent little girls that don’t let their disabilities stop them from attempting the things they want to do. What they want most is to be included when the family rides their bikes, something they are currently unable to do due to safety issues and muscle control. This would also provide a fun, and beneficial, physical therapy tool. Dixie and Alexus doesn’t like to be held back from anything they want to try.

 

Variety KC doesn’t think they should be and through your help they are out cruising around on adaptive bikes. If you happen to see them out riding with their family and friends…wave, (Dixie will be the one pretending to be the pirate.)

 

P.O. Box 3446 | Shawnee, KS 66203 | (913) 558-2309 | varietykc@gmail.com