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Variety Blog

Meet the Kids: Antonio

Antonio

Little Antonio is deaf, blind, and has Phelan McDermid Syndrome. Because of his lack of strength and motor skills, Antonio is unable to sit in a regular chair. He loves taking a bath, but has outgrown a safe baby tub. He has also outgrown his highchair and now has no place to sit to participate in activities. There is a positioning chair that would allow him to sit up in a bath or at a table, but they are very expensive and not covered by insurance. Variety KC and the Caring Program for Children, administered by Blue Cross and Blue Shield of Kansas City, have made sure Antonio will soon be sitting tall! What’s more, his mother will be able to more safely assist him. We couldn’t do it without great community partners like Blue Cross and Blue Shield. If your company is interested in helping kids Be Active, Be Social and Belong, email us – varietykc@gmail.com.

Meet the Kids: Connor

Connor

Connor is an adorable 3-year-old who has been diagnosed with Autism. At this time he is non-verbal; but he is trying so hard. His family can’t understand the few sounds he makes and that frustrates him. His older brother also has Autism, but he is verbal. Their mother explains how much more difficult it is when a child can’t communicate. She worries that he can’t tell them when his stomach aches or when he is thirsty, or even sad. An iPad and apps could change all that and they are especially helpful when started at a young age. Variety KC’s generous supporters believe every child should have a voice – and Connor is getting his! Help us to find a way for other kids like Connor to Be Active, Be Social…BE VOCAL, and Belong. Donate today at VarietyKC.org.

Meet the Kids: Anthony

Anthony

Anthony has seen so many speech therapists and finally his family was given a name for the condition that makes him unable to speak, Apraxia. He is a little boy with so much to say and is terribly frustrated that nobody understands what he wants and needs. Recently, he started working on an iPad at school. He took to it right away and is so excited that he can communicate at school. The iPad has to stay at school, so what Anthony needs is an iPad at home – but it is too much for the family at this time. Variety KC believes every child should have a voice and Anthony’s family is looking forward to finally being able to communicate with him. There are so many kids like Anthony; only an iPad away from communicating. Help give another child a voice, donate today at Varietykc.org!

Meet the Kids: Kelvon

Kelvon

Kelvon is a seventeen-year-old with spastic quadriplegic cerebral palsy, seizure disorder, and static encephalopathy. He is totally home bound and relies on others for all his care. His family has done an incredible job fundraising for a used mobility van – they held bake sales and concerts, anything to raise some money. And they did it! They finally have enough for the van, but they need a lift into the van. Once they have the lift, Kelvon and his mother, will be able to go to church and visit their family and friends. Generous Variety partners made sure Kelvon has his lift and wish him well on his upcoming journeys. Every kid deserves to Be Active, Be Social, and Belong – help others like Kelvon by donating today at VarietyKc.org!

Meet the Kids: Nikolas

Nikolas

Nikolas was born with a condition called Lenz Microphthalmia, it’s a very rare condition with no prognosis. His condition makes his life quite complicated and he is unable to do anything on his own. He can roll over and use his arms, but cannot communicate and physically he needs help with all his activities of daily living. His mom explains that this makes taking a bath or shower very difficult for both Nikolas and his caregiver. A special bath chair would allow Nikolas to safely take a shower or bath and his caregiver would not have the strain of getting him in and out of the bath area. Nikolas has had several surgeries, which resulted in nearly total blindness. He also went through chemotherapy for a cancer discovered in 2012. With all he has battled, taking a safe bath is such a small request – but the expense of the chair made it just out of reach. Nikolas’ story touched the hearts of our Variety supporters and he will soon have his bath chair!  Help Variety to help out other kids like Nikolas – donate today at VarietyKC.org.

Meet the Kids: Randi

Randi

Little Randi has hypophosphatasia and is vent-dependent. She relies on gestures to communicate, but seems to comprehend well. Her therapists feel she would benefit from a PRC Accent Communication device that could be attached to her wheelchair, crib, or one of the chairs she uses at home. This would be her primary source of communication, but the cost is not covered by insurance. Randi’s family and therapists reached out to Variety KC for help in giving her a voice. A way to let her family, friends, and teachers know what she needs and what she wants. Part of a child being active, being social, and belonging is being able to communicate, so that’s exactly what Variety KC did! Randi has her voice, her communication device – and her family isn’t left guessing at what she needs. Don’t all kids deserve that?  You can help by making a donation today at VarietyKC.org

Meet the Kids: Leyla

Leyla

Leyla has Williams Syndrome resulting in low muscle tone and limitations in both strength and posture. Her family is determined to provide opportunities for inclusion for Leyla and supports her development in every way they can. Leyla loves to play with her sister and at school she loves riding their adaptive bike. Having an adaptive hand-foot tricycle of her own would allow her to do what she loves most, riding bikes, with her sister and friends at home. It would also provide strengthening exercise and help improve balance. Think back to your own childhood. A bike meant freedom, independence, and a chance to hang out with friends. It is the type of mobility that Variety KC strives to provide for every child. Find out how you can help, visit www.varietykc.org.

Meet the Kids: Adin

Adin

Adin has Spina Bifida Myelomeningocele, paralyzing him below the knees. He is eleven years old and has three older siblings, all very active. Using a hand operated recumbent bike, Adin could get out and ride bikes with his siblings and neighbors. He could get out in his community and benefit from the social interaction. Best of all, he would  get that much needed exercise that can help prevent atrophy and strengthen his muscles. His parents have tried hard to save for this bike, but on a public servant’s salary – it’s difficult to do with three other teenagers in the family. Variety KC thanks Adin’s dad for his service and is honored to step in and help Adin out. After all, doesn’t every kid deserve the chance to ride a bike? Together we can make that happen! Donate today at VarietyKC.org.

 

Meet the Kids: Dannia

Dannia

Dannia is toddler diagnosed with developmental delays and language impairment (Autism). Her therapists and family have noticed that she is beginning to pick up words and phrases through electronics. An iPad with the appropriate apps will help motivate her to learn more speech. Both of Dannia’s parents are full-time students and the costs of this potentially beneficial device is beyond their means at this time. Variety KC donors understand the importance of early intervention and are making it possible for Dannia to have the tablet she needs! This ability to communicate can have a lifelong impact on Dannia and her future. Help Variety to provide other kids like Dannia with the equipment they need for inclusion. Visit varietykc.org and donate today!

Meet the Kids: Christian

Christian

Can you imagine being a teenage boy and not being able to communicate all your thoughts, needs and wants? Christian is completely non-verbal and unable to express himself in a positive way. His therapists recommend a NovaChat, an assisted and augmented speech device. This device is more than a form of communication, it’s liberation! And what is more important for a young man entering his teens? Gracious Variety donors made it possible for Christian to receive his NovaChat, but there are so many more kids who would benefit from one. Can you help? Visit www.varietykc.org and donate today, doesn’t every child deserve a voice?

P.O. Box 3446 | Shawnee, KS 66203 | (913) 558-2309 | varietykc@gmail.com