Meet the Kids: Ellie

Meet the Kids: Ellie

Down Syndrome isn’t holding her back!

Three-year-old Ellie is active, curious and full of life! Diagnosed with Down Syndrome in utero, Ellie’s parents were determined to find resources, develop a supportive network, and work hard to make sure Ellie had opportunities for inclusion. At the same time, they know how interacting with Ellie also benefits her “typical” friends. In order to be more independent and to keep up with her busy friends and sister, Ellie could benefit from a Hand Foot Tryke. She has had a chance to use one during therapy and loves it. Unfortunately, it isn’t a device covered by insurance – so her family has reached out to Variety KC. Variety partners believe every child has a childhood right to ride a bike! And, Ellie is getting hers! You can help other kiddos like Ellie, donate or find out more HERE.

Danny’s Ride to Alaska

Danny’s Ride to Alaska

What does riding a bike mean?

It means freedom…independence… mobility. Whether you’re on your motorcycle heading to Alaska or pedaling your first adaptive bike down the sidewalk to join your friends – everyone loves a bike!

Variety KC’s partner, Danny O’Neill – the Owner/ Founder of The Roasterie, gets that! And he’s doing something about it. Danny is taking off on an Arctic Bike Ride to Alaska while raising funds to buy adaptive bikes for kids with special needs.

 An adaptive bike not only provides esteem-boosting mobility for a child with special needs, it provides an opportunity for much needed physical activity and inclusion! Adaptive bikes start at $2,500 and unfortunately are not covered by insurance.

Won’t you help Danny in his efforts to make sure every child has a bike?

Meet the Kids: Antonio

Meet the Kids: Antonio

Blind & Deaf Child Needs Variety’s Help

Little Antonio is deaf, blind, and has Phelan McDermid Syndrome. Because of his lack of strength and motor skills, Antonio is unable to sit in a regular chair. He loves taking a bath, but has outgrown a safe baby tub. He has also outgrown his highchair and now has no place to sit to participate in activities. There is a positioning chair that would allow him to sit up in a bath or at a table, but they are very expensive and not covered by insurance. Variety KC and the Caring Program for Children, administered by Blue Cross and Blue Shield of Kansas City, have made sure Antonio will soon be sitting tall! What’s more, his mother will be able to more safely assist him. We couldn’t do it without great community partners like Blue Cross and Blue Shield. If your company is interested in helping kids Be Active, Be Social and Belong, email us – varietykc@gmail.com.

Meet the Kids: Kelvon

Meet the Kids: Kelvon

Van Lift will Change this Teenager’s Life

Kelvon is a seventeen-year-old with spastic quadriplegic cerebral palsy, seizure disorder, and static encephalopathy. He is totally home bound and relies on others for all his care. His family has done an incredible job fundraising for a used mobility van – they held bake sales and concerts, anything to raise some money. And they did it! They finally have enough for the van, but they need a lift into the van. Once they have the lift, Kelvon and his mother, will be able to go to church and visit their family and friends. Generous Variety partners made sure Kelvon has his lift and wish him well on his upcoming journeys. Every kid deserves to Be Active, Be Social, and Belong – help others like Kelvon by donating today!

Meet the Kids: Leyla

Meet the Kids: Leyla

Williams Syndrome and the Need for Exercise

Leyla has Williams Syndrome resulting in low muscle tone and limitations in both strength and posture. Her family is determined to provide opportunities for inclusion for Leyla and supports her development in every way they can. Leyla loves to play with her sister and at school she loves riding their adaptive bike. Having an adaptive hand-foot tricycle of her own would allow her to do what she loves most, riding bikes, with her sister and friends at home. It would also provide strengthening exercise and help improve balance. Think back to your own childhood. A bike meant freedom, independence, and a chance to hang out with friends. It is the type of mobility that Variety KC strives to provide for every child. Find out how you can help, visit our donation page.

Meet the Kids: Adin

Meet the Kids: Adin

Living with Spina Bifida Myelomeningocele

Adin has Spina Bifida Myelomeningocele, paralyzing him below the knees. He is eleven years old and has three older siblings, all very active. Using a hand operated recumbent bike, Adin could get out and ride bikes with his siblings and neighbors. He could get out in his community and benefit from the social interaction. Best of all, he would  get that much needed exercise that can help prevent atrophy and strengthen his muscles. His parents have tried hard to save for this bike, but on a public servant’s salary – it’s difficult to do with three other teenagers in the family. Variety KC thanks Adin’s dad for his service and is honored to step in and help Adin out. After all, doesn’t every kid deserve the chance to ride a bike? Together we can make that happen! Donate today