Disability: RYR1- Congenital Myopathy, Gtube and Low Muscle Tone
Haylee has weak muscle tone and cannot stand, crawl, or walk. She has limited mobility in her arms but continues to get stronger every day. She was able to try a ride-on car at Britain Development in therapy and absolutely loved it. Anything that can help her be mobile and independent will just make her stronger. We are so appreciative of Variety Kc for helping Haylee Be active, Be Social and Belong!!