KC NWSL and Palmer Square Select Variety KC as the Team’s First Community Partner!

KC NWSL and Palmer Square Select Variety KC as the Team’s First Community Partner!

Thank you Chris and Angie Long, as well as the professionals at Palmer Square Capital Management and Kansas City’s newest professional sports team – KC NWSL!

Variety KC could not be more proud to be selected as your first community partner.  When it was announced that KC NWSL was making KC its home, they also announced that 10 percent of all partner revenue would be going back into the community to expand

access and play for underserved youth populations. This type of inclusion is exactly what Variety’s #InclusionRevolution is all about and thanks to Palmer Square and KC NWSL – our community is rapidly becoming the most welcoming and inclusive area in the nation.

Please join us in supporting these partners and in helping Variety KC to ensure that every kid has a chance to Be Active, Be Social, and Belong.  Donate today www.varietykc.org/donate

Meet the Kids – Damien!

Damien is diagnosed with infantile spasms and epilepsy/global developmental delay. Damien fought off infantile spasms, a very rare form of epilepsy for most of the 1st year of his life. During that time he regressed and lost many skills both cognitively and physically. He has since beat the spasms but is having other epileptic seizures a few times a month while still working hard to progress in his development. He has come so far in the last year. He is cognitively and developmentally around 18 months. He does PT and OT every other week and speech twice a week so he is a busy little guy and hasn’t had the greatest sleep for a while now.

Damien has been our little warrior from the beginning of his diagnosis. He has had many hospital stays, blood draws, medication changes and setbacks along the way but one thing has never changed, his absolutely shining soul. This little guy has faced an uphill battle for most of his life yet he still continues to stay positive and brighten a room with his smile. Doctors told us he would likely never walk or talk but he didn’t accept that and is now on the verge of walking and beginning to babble so much more. He has always had the most beautiful disposition with the best smile and giggle that is just downright contagious. He loves his siblings and has an extra special bond with his daddy.

Since he has grown, it has been too difficult for us to lift him in and out of a crib because the mattress would have to be on the floor to prevent him from tipping over the rail. He doesn’t yet understand that trying to stand up at a short rail would send him over the edge so we can’t use a toddler bed or even a twin with the typical rails. His sleep has not been the best in part due to this. We want him to have a comfortable and safe place to sleep but our insurance denied us. This bed would also give us peace of mind because he has seizures at night sometimes and this bed comes with a camera built in that would be so helpful in monitoring for seizures. It is also a calm space for him to relax because he does tend to get overstimulated at times. We would be so grateful to have a safe and comfortable place for our little warrior to sleep and be well rested to be able to conquer the day and have the energy to keep working toward milestones through the multiple therapies he receives.

If you, like Variety, believe every kid should be social, be active, and belong – please donate today – www.VarietyKC.org/donate

Thank you for joining our #inclusionrevolution

Meet the Kids – Mark!

Mark is diagnosed with Autism Spectrum Disorder, Global Developmental Delay, Pica, Mixed Receptive – Expressive Language Disorder.

Mark gets frustrated when we are unable to understand his wants and needs. A communication device has been recommended for Mark to communicate with others. Usage of communication devices in the past proved effective, as he seems calm and gets less frustrated when he uses it, in addition to him being able to communicate with us and understand his needs when requested. With more practice with the device, we hope that Mark’s communication skills will improve.

Due to his diagnosing with Autism, we as parents are worried about Mark’s future and his ability to grow among his peers. Fortunately, usage of the communication device and therapy gave us hope. We noticed changes in his behavior and the way he interacts with us that he is improving.

If you, like Variety, believe every kid should be social, be active, and belong – please donate today – www.VarietyKC.org/donate

Thank you for joining our #inclusionrevolution

Meet the Kids – Sophia!

Sophia is diagnosed with epilepsy and cerebral palsy with a hip dislocation. Sophia is non-verbal and wheelchair bound.

Sophia is a funny teenager who loves nature and outdoors. Sophia is incredibly smart and an old soul
who loves Frank Sinatra and 40’s music. We would love the jogging stroller to help get Sophia out in nature more to be able to explore and get exercise. In her current wheelchair we are limited to where we can go.

If you, like Variety, believe every kid should be social, be active, and belong – please donate today – www.VarietyKC.org/donate

Thank you for joining our #inclusionrevolution

Meet the Kids – Gabriel!

Gabriel has Developmental delays, Mixed Expressive/Receptive Language Disorder, Dysphagia, Gastronomy Tube, Hypospadias, Vesicoureteral Reflux, Generalized Muscle Weakness, Atrial Septal Defect.

Gabe struggles to express his needs and wants. He is able to vocalize some basic sounds, but combining sounds into words requires motor planning, which is a struggle. He gets frustrated and angry when his wants and needs and requests aren’t able to be communicated. He is a happy, resilient fighter who never gives up and never loses his smile. He loves to give hugs and play with water in the sink. He has used an iPad during therapy and the therapists have allowed our family to borrow the iPad so Gabe can communicate with us. This is allowing him to have a voice and is alleviating the frustration that he feels when he isn’t able to verbally tell us what he wants.

If you, like Variety, believe every kid should be social, be active, and belong – please donate today – www.VarietyKC.org/donate

Thank you for joining our #inclusionrevolution

Meet the Kids – Evie!

Evie is diagnosed with T21 down syndrome. When we found out about Evie having Down syndrome we were scared! We were scared of the unknown. If we only know how much joy this little girl was going to bring to our little family!

Evie is a little go get her. She is not going to let anything slow her down. She tries really hard to keep up with her big sister Brindle. Evie wants to walk so bad. Her little ankles just are not strong enough. That’s why she will be getting Orthotics to help her start walking on her own.

If you, like Variety, believe every kid should be social, be active, and belong – please donate today – www.VarietyKC.org/donate

Thank you for joining our #inclusionrevolution