Jalinn has dwarfism the most common form that is called achondroplasia. With having dwarfism, Jalinn has shortened legs and arms but to know her you would not know other than seeing her height. She doesn't let her dwarfism stop her. She can and will do anything that...

Haylee spent 8 months in the NICU after being diagnosed with RYR-1 or Central Core Disease. She went from not being able to move at all after birth, to getting bigger and stronger and is now able to move her body on her own. She can sit unassisted but uses a stander...

Easton is diagnosed with Trisomy 7 mosaic and Russel Silvers Syndrome. Easton had a lot of difficulty developing in utero. He severe low fluid and a hard time growing. He spent seven months in the NICU at Children's Mercy, his air way did not develop and had to get a...

Ruby is diagnosed with cerebral palsy. The spasticity in her diagnosis describes that many of Ruby's major muscle groups are permanently flexed or tight/rigid. The spasticity in her muscles makes it difficult to control her muscles and to walk, plus has created...

Logan is diagnosed with autism and is non-verbal. Logan became non-verbal at about 18 months. When he was two years old we started speech therapy. Though it is hard at times we do our best to understand each other and Logan's needs. He started going to pre-school at 3...

Caleb is diagnosed with Duchenne Muscular Dystrophy and Autism. Because of his loss in muscle strength he is fully dependent on an adult and his wheelchair. With all the odds against him, Caleb is the happiest kid we have ever seen. We call him "Sunshine" because he...

varietykc.org    FIRST Variety KC Splash Pad/Sprayground  Grand Opening with Presentation of Summer Grants for kids with Disabilities Please join us for the Ribbon Cutting Ceremony of the Grand Opening of Variety KC’s inclusive Splash Pad/Sprayground and inclusive...

We can all attest to the power and importance of friendship, but perhaps American philosopher, psychologist, and professor William James put it best when he said, “Wherever you are, it is your own friends who make your world.” Don’t get me wrong; I’m happy to see...

Jake is diagnosed with autism.  Jake is such a smart, loving, funny boy. Jake loves school and his teachers. We are just learning every day to help our son who means the world to us. Jakes smile and laugh can make anyone’s day. Jake is learning at school how to...

Kenize was born with a rare metabolic disorder called Glutaric Acidemia type I. She is unable to process certain proteins and requires special metabolic formula to support her nutrition. A symptom of GA1 is chronic low appetite. Kenzie has had a consistent low...

Brandi has been diagnosed with a genetic disease called Tuberous Sclerosis. She recently had surgery for her tuberous sclerosis, and is wheelchair bound. A wheelchair ramp with help Brandi navigate her wheelchair and help her independently get into her home. If you,...

Lexi has been diagnosed with Chorea Hyperkinetic Movement Disorder, Cavernous hemangioma, multiple brain anomalies, Epileptic Encephalopathy, Epilepsy, Abnormal EEG, Autism, Genetic Mutation on X chromosome, Mixed Receptive and Expressive language Disorder, Mood...