Meet the Kids – Levi!

Levi and his family just want a way to get some healthy exercise together!  Diagnosed with Angelman Syndrome, Levi has severe developmental delays and motor challenges. This means that activities such as basketball or various sports are not a possibility for Levi. However, when he gets on an adaptive bike – he can really move!  Levi used to have a tryke at home, but he outgrew it. He has access to a bike a school and in therapy, but really needs something similar at home in order to get the physical exercise that would greatly benefit him. One of the biggest setbacks we have seen as a result of this pandemic, the loss of access to therapies and equipment used at now closed schools.  An adaptive tryke built for Levi’s size and needs would make it possible for the whole family to participate in a healthy, fun activity. Variety KC understands!  Levi will now have access to a bike of his own, one he can use to engage with his family and neighbors, plus get the exercise he so needs. Don’t all kids deserve to have a bike?  Please help us to make this possible by donating to Variety KC today.  wwwvarietykc.org/donate.   

They say money doesn’t buy happiness – but you know, it does!  Because it can buy a bike!

Meet the Kids – Samuel!

Meet the Kids – Samuel!

Samuel was diagnosed as Level III on the Autism Spectrum last fall. He participates in multiple therapies and works so hard. His hard work is especially noticeable in Speech Therapy where he is beginning to verbalize a bit when using an iPad and apps. Like so many kids, when Samuel can’t make his needs and wants known, he has tantrums and outbursts. Who wouldn’t?  Can you imagine – no way to let somebody know you were uncomfortable, thirsty, or in pain?  The iPad therapy is showing so much promise that Samuel’s therapist recommends having one at home to reinforce his therapy sessions and reduce frustrations in communication at home.

Variety KC donors understand this need and they want Samuel to find his voice!  He’ll be getting his iPad and apps – won’t you help us to make sure every kid that needs one gets an iPad too? Donate today www.varietykc.org/donate

Thank you from the bottom of our Variety Heart!

 

Meet the Kids – LUCAS

Meet the Kids – LUCAS

Champions don’t quit.  They rise, they fall, they try again.  At the age of seven, Lucas is a champion!

A malignant brain tumor has resulted in visual impairment. Two life threatening emergencies have taken place over the last two years. Each time, he fought back to regain the skills he lost.  He currently needs assistance to walk and navigate changing or uneven terrain, but Lucas is rising and working hard.  Because of the current virus and his vulnerable state, Lucas can’t take advantage of community resources, so his entire world is focused on his family and home surroundings. Being outdoors is his happy place. He loved riding his tricycle, but has outgrown it and needs an adaptive bike for safety reasons.

His mom tells us that even though Lucas in non-verbal, when he gets on a bike he jabbers and makes sounds of pure joy. We know that his joy would increase with the proper equipment. An adaptive bike would give him valuable physical activity, a chance to do something socially with his family, and a way to build his confidence and feeling of independence.  Variety’s generous donors understand this – and Lucas is getting his bike!  Won’t you help us make sure that all the kids, all those champions, have the bike they need too?  Donate today at Varietykc.org/donate

Thank you!

 

 

Meet the Kids – Graham!

Meet the Kids – Graham!

 

Graham’s mother shares his story:

Around 18 months at Graham’s checkup we mentioned that he didn’t have too many words. He grunted a lot. We applied for First Steps to get some speech assistance; however, he was denied. He was barely passed. We tried again 6 months later, and he got into the program. He did so great! He started learning to say one syllable words. He was in the program for a little over a year. At that time, he started putting two words together. He still had trouble putting whole words together. For example, he would say “bu” for “bug” and “dah” for “dog”. He kept dropping either the first sound or the last.

We put ourselves on a waiting list for Children’s Mercy for their speech program. It took several months, but by the time First Steps ended, we were able to keep going in therapy. His speech pathologist at Children’s Mercy diagnosed him with speech apraxia. Childhood apraxia of speech (CAS) is a speech disorder in which a child’s brain has difficulty coordinating the complex oral movements needed to create sounds into syllables, syllables into words, and words into phrases. Typically, muscle weakness is not to blame for this speech disorder.

Graham is a hard worker. He tries and tries. He is persistent and he doesn’t give up. He is great at imitating sounds but getting some of the sounds to come out is still a struggle for him. He has been in the school district preschool for little over a year and has made so much progress. Many still can’t understand what he is saying, but that doesn’t stop him from trying. He is great at either acting out what he needs, or he will show you. He may not be able to speak at our level, but that doesn’t stop him from trying. I’m so proud of our little dude. I spoke with his speech teacher Ms. Julie at his preschool and they have been using TouchChat HD with him to help with communication. She has said he has made great progress with the application. He will put sentences together and he will say them back. The audio helps him listen to the sounds and helps him say them out loud. She recommended that we should use it at home as well. This application would be so helpful for Graham. Graham loves to draw and make things. We spend hours doodling and using our creativity. He enjoys playing with his robots.”

This little guy is working so hard and it sounds like they have made such great progress with TouchChat HD. Especially now, during home isolation, it’s so important to make sure that kids in therapy have the equipment they need to use at home!  Help us to give Graham his voice. Donate today at varietykc.org/donate/        Thank you!

Meet the Kids – Arthur!

Meet the Kids – Arthur!

 

Arthur’s mom explains:

“Art has a speech delay along with sensory and behavioral concerns. His primary communication is by pointing or directing you to his wants/needs, however lately he is showing an interest in using an app to point to pictures on my phone and that directs us to what he wants. This has helped calm down his tantrums and physical outbursts. We are currently a one working family of six. I have stayed home to take care of four kids, and both of our youngest have speech delays and multiple therapy sessions each week.”

They are attempting to purchase a family home and just don’t have the budget for a personal device and apps right now but know that it would make a world of difference for Art!

This letter was written before the #stayhome order was in place. Can you imagine being isolated with a young child who can’t communicate their needs and wants?  The personal devices they work on in therapy stay in therapy and when they get home, the frustration comes out.  In this case, there is no scheduled therapy because of COVID-19, so the lack of a device means the lack of progress for Art. Please help Variety KC make sure that all kids have a voice!  Donate today at varietykc.org/donate/

Thank you!

 

Meet the Kids – Matthew!

Meet the Kids – Matthew!

Matthew is such a happy young fellow!  He has Spina Bifida, and while that doesn’t stop him – it does stop him from walking.

What’s a guy to do?  GO BABY GO!  That’s right, Matthew can’t walk, but he can ride and his new Variety KC GoBabyGo car is exactly what he needed for mobility, to gain independence, and to explore freedom. Matthew was just one of many Variety KC Kids who “drove” away after our recent GoBabyGo event, and we have a list of so many more who want these customized cars. Help us to make sure that every child has a way to Be Active, Be Social and Belong!  Donate today at varietykc.org/donate/  

Be a part of our #inclusionrevolution !!!!