Wilson “Wil” was born in the Commonwealth of the Northern Mariana Islands, in the village of Garapan. He was adopted in 2013 and his mother, Kim, moved with him to Kansas in 2018 to be closer to her family. (Welcome to KC Wil!) Wil’s therapist wrote to us and in her letter, she builds such a strong case for why every child NEEDS a way to communicate!
“Wil is lovable, funny, and social. He is a very caring friend to his classmates, greets his peers, and has concerns for his peers. He really likes being a “helper.” His diagnosis of Apraxia makes it difficult for him to form social relationships with his peers because his communication is a barrier. Wil is very athletic and active, which requires a lot of supervision in the home setting. Due to Wil’s communication difficulties, he must always have supervision because he would not be able to communicate any sort of abuse, neglect, or exploitation. By having an AAC device, this would increase Wil’s independence, self-advocacy, and social relationships for his future. He is responding to the use of an AAC device at school, but this is not a dedicated device that he owns and is able to take home with him — which is like taking his voice away from him when he leaves school. With his dedicated therapists and school team, in addition to his supportive mother, Wil could grow his communication skills exponentially before leaving the elementary school setting and build strong social relationships with peers prior to entering middle school and high school. This device would change his life!”
Variety KC’s generous partners understand the importance of communication. These partners, along with Wil’s insurance provider – BCBS – will make sure Wil gets his “voice,” but there are so many more kids in need. Help us to help all these kids, especially during this “stay at home” time. Donate today by clicking HERE – and thank you for joining our #InclusionRevolution!
Variety KC supports so many amazing healthcare professionals and facilities in our area, Brittain Development is one of those providers doing tremendous work. The following is a request from a therapist at Brittain and the very last line in her request is exactly why Variety KC is here….to help kids like Ruby to explore and participate in activities with peers and family in a therapeutic way!
“Ruby is a social and highly motivated 30-month-old girl diagnosed with Spina Bifida. She presents with moderate limitations in strength of her core and lower extremities. She currently receives individual physical therapy twice per week at Britain Development. Ruby is extremely motivated to participate in activities that she sees other children perform and she works hard to accomplish gross motor tasks. Ruby loves to walk with her walker on her street at home to greet neighbors and she has started to show an interest in riding toys that increase her mobility and speed. We have used a hand/foot Amtryke during most of our recent PT sessions at Britain Development and she has been asking for this activity every time she arrives for therapy. She recently propelled a foot-pedaled trike for a few revolutions in a row without assistance, but she fatigued sooner than with hand/foot cranks and requested to be finished.
I recommend the Early Intervention Hand/Foot Propelled Amtryke: AM-10 with fixed drive, standard seat, push bar and a pair of small foot cups. Having this Amtryke to use at home, on a more regular basis than just during weekly PT sessions, would assist with Ruby’s overall coordination and lower extremity strength/alignment for other gross motor skills. It would also give her another means to interact her neighbors, participate in play with other children and family bike rides with her parents.Thank you for your consideration for providing this piece of therapeutic equipment. Ruby is becoming more independent with mobility and she loves gross motor activities. She will benefit from having an Amtryke to further explore her outdoor environment at home and participate in activities with peers and family in a therapeutic way.?
If you, like Variety, believe that all kids need a bike – please donate today toward Ruby’s Amtryke – www.VarietyKC.org/donate
Thank you for joining our #inclusionrevolution !
Recently Variety received this note from Kya’s mom and we wanted to share it with you.
“Kya does not let her diagnosis define her. She makes choice in what foods she eats, what clothes she wants to wear and what activities she wants to participate in. Kya has participated in Job Olympics, she participated in the shredding program. Kya uses a communication device, Nova Chat, to communicate her basic wants and needs. She uses this device both at home and at school. Kya loves to spend time with her family. Kya loves going to the lake with her family, shopping with her mom, or watching her favorite TV’s shows while at home. Before Covid-19, Kya was attending Gardner High School. Despite having cerebral palsy and encephalopathy, Kya is a very happy individual and has a great laugh! Kya attends Nexus Church with her family. Kya also enjoys participating in swim therapy once a week. Kya would love to be the owner of a chill out chair so that she relax with her family without restraints that come with sitting in a wheelchair after a long day of participating in activities or school.”
As you can see, Kya has a very active and involved life, but she lives that life primarily in her wheelchair. In fact, she spends so much time in the chair that she develops sores. Moving to the floor can relieve some of the pressure points, but she gets rug burns from moving around on the floor. What she really needs is a reprieve, a place to feel comfortable. That’s where a Chill Out chair comes in. These chairs are comfortable and supportive, without the use of straps or harnesses. A Chill Out chair provides a safe place for Kya to relax and that’s exactly what Variety KC partners want for her! Think about your own life and how frequently you move around to get more comfortable – doesn’t everyone deserve that option? Help us to make Kya safe and comfy – donate today at www.VarietyKC.org/donate
Levi and his family just want a way to get some healthy exercise together! Diagnosed with Angelman Syndrome, Levi has severe developmental delays and motor challenges. This means that activities such as basketball or various sports are not a possibility for Levi. However, when he gets on an adaptive bike – he can really move! Levi used to have a tryke at home, but he outgrew it. He has access to a bike a school and in therapy, but really needs something similar at home in order to get the physical exercise that would greatly benefit him. One of the biggest setbacks we have seen as a result of this pandemic, the loss of access to therapies and equipment used at now closed schools. An adaptive tryke built for Levi’s size and needs would make it possible for the whole family to participate in a healthy, fun activity. Variety KC understands! Levi will now have access to a bike of his own, one he can use to engage with his family and neighbors, plus get the exercise he so needs. Don’t all kids deserve to have a bike? Please help us to make this possible by donating to Variety KC today. wwwvarietykc.org/donate.
They say money doesn’t buy happiness – but you know, it does! Because it can buy a bike!
Samuel was diagnosed as Level III on the Autism Spectrum last fall. He participates in multiple therapies and works so hard. His hard work is especially noticeable in Speech Therapy where he is beginning to verbalize a bit when using an iPad and apps. Like so many kids, when Samuel can’t make his needs and wants known, he has tantrums and outbursts. Who wouldn’t? Can you imagine – no way to let somebody know you were uncomfortable, thirsty, or in pain? The iPad therapy is showing so much promise that Samuel’s therapist recommends having one at home to reinforce his therapy sessions and reduce frustrations in communication at home.
Variety KC donors understand this need and they want Samuel to find his voice! He’ll be getting his iPad and apps – won’t you help us to make sure every kid that needs one gets an iPad too? Donate today www.varietykc.org/donate
Thank you from the bottom of our Variety Heart!
Champions don’t quit. They rise, they fall, they try again. At the age of seven, Lucas is a champion!
A malignant brain tumor has resulted in visual impairment. Two life threatening emergencies have taken place over the last two years. Each time, he fought back to regain the skills he lost. He currently needs assistance to walk and navigate changing or uneven terrain, but Lucas is rising and working hard. Because of the current virus and his vulnerable state, Lucas can’t take advantage of community resources, so his entire world is focused on his family and home surroundings. Being outdoors is his happy place. He loved riding his tricycle, but has outgrown it and needs an adaptive bike for safety reasons.
His mom tells us that even though Lucas in non-verbal, when he gets on a bike he jabbers and makes sounds of pure joy. We know that his joy would increase with the proper equipment. An adaptive bike would give him valuable physical activity, a chance to do something socially with his family, and a way to build his confidence and feeling of independence. Variety’s generous donors understand this – and Lucas is getting his bike! Won’t you help us make sure that all the kids, all those champions, have the bike they need too? Donate today at Varietykc.org/donate