Maddox was born with cerebral palsy, an autism spectrum disorder and Duchenne’s Muscular Dystrophy. Maddox has high muscle tone (too much tension in his muscles), particularly in his right side caused by his cerebral palsy. That is why he walks with a walker and uses a wheelchair for distance. His Duchenne’s Muscular Dystrophy is a “low tone” disease. The MD will cause muscle degeneration over time and he will become wheelchair bound. Maddox is also on the Autism spectrum, which for him means eye contact is difficult and he needs structure. He can also get stuck on topics and sometimes repeats things.
July can pull Maddox in his manual wheelchair. She can also open doors, drawers and do light switches. Maddox can brace on her and pull himself to standing. July also has a calming effect on Maddox. July allows Maddox to be the kid with the dog, rather than the kid in the wheelchair. Maddox has lots of friends at school who love to assist him when he needs help.
Maddox plays soccer with Sporting Blue Valley in their TeamSoccer program. He plays Challenger Football and rides horses at Heartland. In the past he has been the 2012 Goodwill Ambassador for the State of Kansas for the MDA, the Fire Fighter Ambassador and this year he was an area Shambassador for shamrock sales.
Maddox loves transportation, geography, museums and national landmarks. He is a huge fan of Abraham Lincoln and has been to ten Lincoln National Landmarks.
If Maddox has an interest, his family helps him figure out how to make it work. When Maddox wanted to play soccer and football, his mom found teams that play on fields which accommodate his walker. When the family wanted to travel to Vietnam, they didn’t let it stop them that Vietnam is not very handicap accessible. If it is something worth doing, they just do it. They refuse to let disabilities stand in the way of having a great life.