James is our first born child and the true hero of our family. At a 20 week ultrasound, we learned he had a cleft lip which would require surgery and make...
Inclusion
Such An Easy Way to Help Variety KC
What an easy way to help Variety KC Kids! Simply clean out your closets and donate your unused items at a Variety KC Donation Bin. There are locations all...
Variety KC Partners with KC ZOO with inclusive efforts
By joining forces, the Friends of the Zoo and Variety KC have partnered to make Kansas City's Zoo among the most inclusive in the country. The Kansas City Zoo...
Meet the Kids – Keegan!
Keegan is a 16-year-old that is diagnosed with Angelman Syndrome, a rare genetic syndrome that causes neurological and psychological problems that impacts his...
Meet the Kids – Emma!
Emma has Aicradi Syndrome and uncontrollable epilepsy, with daily seizures. She is unable to use the left side of her body, and is wheelchair bound. Emma is...
Meet the Kids – Nathaniel!
Nathaniel has CDKL5 deficiency disorder. It is a rare developmental epileptic encephalopathy caused by mutations in the CDKL5 gene. It causes him to have a...
Meet the Kids – Ruby!
Ruby was born with split spine, which is similar to spina bifida. She does not have use of, or feeling in, her left leg. She recently had surgery for ankle...
Meet the Kids – Jalinn!
Jalinn has dwarfism the most common form that is called achondroplasia. With having dwarfism, Jalinn has shortened legs and arms but to know her you would not...
Meet the Kids – Kennedy!
Haylee spent 8 months in the NICU after being diagnosed with RYR-1 or Central Core Disease. She went from not being able to move at all after birth, to...
Meet the Kids – Easton!
Easton is diagnosed with Trisomy 7 mosaic and Russel Silvers Syndrome. Easton had a lot of difficulty developing in utero. He severe low fluid and a hard time...
Meet the Kids – Ruby!
Ruby is diagnosed with cerebral palsy. The spasticity in her diagnosis describes that many of Ruby's major muscle groups are permanently flexed or...
Meet the Kids – Logan!
Logan is diagnosed with autism and is non-verbal. Logan became non-verbal at about 18 months. When he was two years old we started speech therapy. Though it...