Isaiah has so much energy, but that’s one of the challenges of Duchenne Muscular Dystrophy, a condition that can be carried by females, but presents in males. Before boys with DMD lose ambulation, they are challenged with a loss of energy, walking long distances, and staying upright.. Over the course of the day at school or at home with our family, Isaiah wears down physically and mentally. Many families get scooters to assist in this phase, but they are hard to drive for an 8 year-old and they also lead to posture and form difficulties. A piece of equipment called SmartDrive is a vast improvement over the scooter because it encourages good positive posture, allows Isaiah independence, and by reducing the amount of walking – helps him save him energy during the day. of a lot of walking. This means more quality time with friends, family, and at school!
Help other kids like Isaiah to get the equipment they need for a more active and inclusive life. Give today at VarietyKC.org/donate. Thank you!!,
Meet Nate, a young man with a lot to offer. Nate has been diagnosed with
Autism, Down Syndrome, intellectual disability, and hypothyroidism. He has minimal, purposeful verbal communication. However, Nate knows many words, it’s just that due to his disability, he is not able to put words together meaningfully (semantics). This has impacted his ability to participate in community activities and form social relationships with peers. He has not been able to participate in the Down Syndrome Guild STARS activities because he needs support to assist him with communicating and when he does not have the language/communication skills to initiate social interactions, then he ends up just “observing” the activities and peers around him. With this device, along with Nate’s continued therapy support, we believe he can become a participant in social opportunities around him.
Variety KC partners understand the importance of communication and the role it plays in inclusion, and Nate received the device he needed. Please help us make it possible for all kids to communicate to the best of their ability. Give today at varietykc.org.
Coming up this December, and FOR THE FIRST TIME EVER, we’re opening the Liberty Cafe at Discovery Middle School. This pop-up style cafe offers a chance for students to practice job skills (serving Roasterie coffee) and get therapy at the same time.
Students move out of their wheelchairs and are situated in the upright portable harness system. This allows them to interact with “customers” at eye-level and experience the world from a different perspective. Our therapists point out it also is beneficial in strengthen muscle groups and for circulation.
Building strength, skills, and confidence! Variety KC’s sponsors and generous supporters have made this possible for the first time ever, in any school!
Boston was diagnosed with autism and has not used any words for communication. His ABA Therapist has been working with him using the Touchchat app on her iPad and he is responding really well to it!
His parents have tried using pictures to help him communicate at home, but is just isn’t working as well as Touchchat and they simply can’t afford a device at this time. Their hope is that he continues to understand the pictures on the app and can translate that understanding into speech. The beauty of Touchchat is, even when speech begins to develop, the app is beneficial in adding new words.
All they really want is to know what Boston wants and needs!
Variety KC partners believe every child should have a voice and a way to be heard. Boston received his device, but there are so many more kiddos who need them. Can you help? Donate today at varietykc.org/donate/
Noah is a young boy with autism spectrum disorder (ASD). ASD refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. According to the Centers for Disease Control, autism affects an estimated 1 in 59 children in the United States today.
Noah is non-verbal and has a busy schedule. Noah splits time between mom’s house, dad’s house and daycare… as well as extended family members houses who help with childcare. At school, Picture Exchange has proven to work for him, but it is extremely hard to manage and keep the hundreds of pictures organized and together between location transfers. A communication device would be ideal for Noah to express his wants and needs.
Despite both parents working,(they are raising 4 children, one with special needs), and it’s difficult to find the extra dollars for a communication device such as an iPad with Touchchat.
Variety KC partners believe that every child deserves a voice, a way to communicate and alleviate the frustration of not making their needs, wants, and thoughts known. Noah is getting is device, but there are so many more who need them. Please help us give every child a voice – donate today at VarietyKC.org/donate/
McCoy was diagnosed with these disabilities: 1q43-44 Deletion Syndrome, Complete Agenesis of the Corpus Callosum, Microcephaly, and Global Delays. However, McCoy’s conditions don’t begin to describe the determined young man you see here! Just read what his mom has to say:
McCoy is the most determined person I have ever had the pleasure of meeting. From the moment he was born he has had to work very hard to learn skills like sucking, swallowing, smiling, reaching out, grasping items, sitting up, and many others skills that come so easily to most of us. Although he is non-verbal, it is clear by simply looking into his smiling eyes that he has so much to say! It is a real struggle to see your child full of personality, but not have a voice or physical ability to convey his needs, feelings and opinions. Having a way for him to express things like wanting a drink of milk, or if he is ready to get our of his stander, would also be giving him the gift of independence. If eyes could speak his would be that of a million words. Providing him a tool like Touch Chat with a unit that is easy to handle and use like the iPad Mini with keyguard could open up his world to so much possibility!
Variety KC wants to help McCoy express those million words and he is getting his communication device. Every child needs a voice….a way to connect…to express wants and needs. Won’t you help us to help others like McCoy? Please donate today at varietykc.org/donate/