Haylee spent 8 months in the NICU after being diagnosed with RYR-1 or Central Core Disease. She went from not being able to move at all after birth, to...

Easton is diagnosed with Trisomy 7 mosaic and Russel Silvers Syndrome. Easton had a lot of difficulty developing in utero. He severe low fluid and a hard time...

Ruby is diagnosed with cerebral palsy. The spasticity in her diagnosis describes that many of Ruby's major muscle groups are permanently flexed or...

Logan is diagnosed with autism and is non-verbal. Logan became non-verbal at about 18 months. When he was two years old we started speech therapy. Though it...

Caleb is diagnosed with Duchenne Muscular Dystrophy and Autism. Because of his loss in muscle strength he is fully dependent on an adult and his wheelchair....

varietykc.org    FIRST Variety KC Splash Pad/Sprayground  Grand Opening with Presentation of Summer Grants for kids with Disabilities Please join us for the...

We can all attest to the power and importance of friendship, but perhaps American philosopher, psychologist, and professor William James put it best when he...

Jake is diagnosed with autism.  Jake is such a smart, loving, funny boy. Jake loves school and his teachers. We are just learning every day to help our son...

Kenize was born with a rare metabolic disorder called Glutaric Acidemia type I. She is unable to process certain proteins and requires special metabolic...

Brandi has been diagnosed with a genetic disease called Tuberous Sclerosis. She recently had surgery for her tuberous sclerosis, and is wheelchair bound. A...

Lexi has been diagnosed with Chorea Hyperkinetic Movement Disorder, Cavernous hemangioma, multiple brain anomalies, Epileptic Encephalopathy, Epilepsy,...

Wilby is diagnosed with Cerebral Palsy and Apraxia of Speech. He is able to walk but has limited use of right hand and limited verbal speech.He has excellent...